About Folia Health
Folia Health is a digital health platform founded by family caregivers that helps individuals with chronic and rare conditions transform their daily health experiences into structured data insights. The company's mobile app enables users to quickly capture what they call 'home-reported outcomes' (HROs) - observations about symptoms, treatments, flare-ups, and overall wellbeing - in 90 seconds or less. With over 40,000 users who have shared 4.5 million home-reported outcomes, Folia serves as a comprehensive health tracking solution that helps patients spot patterns, understand correlations, and make data-driven decisions about their care. The platform supports all rare and chronic conditions, with specialized in-app customizations for conditions including Paroxysmal Nocturnal Hemoglobinuria (PNH), Eczema, Lupus, Sickle Cell Disease, IgA Nephropathy (IgAN), and High Triglycerides. Users maintain full control over their data and can optionally participate in paid research studies or the Data Dividends program, earning compensation for contributing de-identified data to medical research. For life sciences companies, Folia offers an end-to-end research solution that addresses common real-world data challenges. The platform captures high-fidelity, patient-driven insights about disease heterogeneity, treatment patterns, and therapy impact that traditional clinical endpoints often miss. Services include protocol design, multi-channel recruitment, validated ePRO deployment, data linkage to EMR and claims data, and comprehensive analysis and reporting. The company's proprietary methodology enables precision outcomes measurement by capturing health experiences in near real-time outside clinical settings, providing a more complete understanding of patient phenotypes and response to therapy.
Mission & Story
Mission
Build a platform where traditionally underutilized patient health data can help to better understand future needs and treatment for rare and chronic conditions
Founding Story
Founded by family caregivers who recognized the need to transform lived health experiences into valuable structured data to support research and personalized care
Clinical Focus
Medical conditions and clinical areas addressed by Folia Health.
Who It Serves
Milestones & Awards
Recent Milestones
Active research studies including BRAVE-PWS Caregiver Study, CIDP Compass Study, IgAN Bridge Study, PNH Study, and Connect C3G Study. Data Dividends program offering $4/month for users who share data for research.
Social & Media
Latest Updates
New Feature: See Patterns Faster With Calendar Filters
Why Tracking Matters in Prader‑Willi Syndrome: A Q&A for Caregivers
Spoons, Swipes & Self-Worth: Dating Beyond the “I’m Too…” Narrative
PNH Treatment Journeys: Real Stories from Patients
Swinging for a Cure: One Advocate's Mission to Make PNH Visible
Company Details
- Founded
- 2018
- Headquarters
- Boston, MA, USA
- Employees
- 1-10
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