Health AI Central
Peer-Reviewed Publication
Patient Educ Couns2026;152109796.November 1, 2026Journal Article

Patient and caregiver knowledge and understanding of acute myeloid leukemia and perceptions of oncologist communication quality.

Austin Wesevich1, Yingzhu Chen2, Soroush Mortaz-Hedjri3, Marielle Jensen-Battaglia4, Jason H Mendler5, Jane L Liesveld6, Rachel A Rodenbach7, Eric Huselton8, Lester Wakefield9, Karen Savino10, Kah Poh Loh11
1Section of Hematology/Oncology, University of Chicago, 5841 S Maryland Ave, MC 2115, Chicago, IL 60637, United States. Electronic address: austin.wesevich@uchicagomedicine.org.
2University of Rochester, 500 Joseph C Wilson Blvd, Rochester, NY 14627, United States. Electronic address: yingzhu_chen@urmc.rochester.edu.
3University of Rochester, 500 Joseph C Wilson Blvd, Rochester, NY 14627, United States. Electronic address: soroush_mortazhedjri@urmc.rochester.edu.
4Department of Internal Medicine, Yale School of Medicine, 330 Cedar St, PO Box 208056, New Haven, CT 06510, United States. Electronic address: marielle.jensen-battaglia@yale.edu.
5Division of Hematology & Oncology, Department of Medicine, Wilmot Cancer Institute, University of Rochester Medical Center, 601 Elwood Ave, Rochester, NY 14624, United States. Electronic address: jason_mendler@urmc.rochester.edu.
6Division of Hematology & Oncology, Department of Medicine, Wilmot Cancer Institute, University of Rochester Medical Center, 601 Elwood Ave, Rochester, NY 14624, United States. Electronic address: jane_liesveld@urmc.rochester.edu.
7Division of Hematology & Oncology, Department of Medicine, Wilmot Cancer Institute, University of Rochester Medical Center, 601 Elwood Ave, Rochester, NY 14624, United States. Electronic address: rachel_rodenbach@urmc.rochester.edu.
8Division of Hematology & Oncology, Department of Medicine, Wilmot Cancer Institute, University of Rochester Medical Center, 601 Elwood Ave, Rochester, NY 14624, United States. Electronic address: eric_huselton@urmc.rochester.edu.
9Myeloid Cancer Advisory Board, University of Rochester Medical Center, 601 Elwood Ave, Rochester, NY 14624, United States. Electronic address: duartewakefield@aol.com.
10Myeloid Cancer Advisory Board, University of Rochester Medical Center, 601 Elwood Ave, Rochester, NY 14624, United States. Electronic address: ksredbug@gmail.com.
11Division of Hematology & Oncology, Department of Medicine, Wilmot Cancer Institute, University of Rochester Medical Center, 601 Elwood Ave, Box 704, Rochester, NY 14642, United States. Electronic address: kahpoh_loh@urmc.rochester.edu.
PubMed DOI

Abstract

INTRODUCTION: Acute myeloid leukemia (AML) is primarily diagnosed in older adults who rely on caregiver support. Oncologists must communicate complex information to both patients and caregivers. Associations between oncologist communication and patient and caregiver knowledge and understanding remain unknown. METHODS: This cross-sectional secondary analysis utilized data from a pilot randomized d…

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